Incidental finding my ass...
Current mood: 
enraged
Category: Life
Now I truly know the frustration of the phrase "incidental finding". This is a phrase that everyone on the yahoo group for AC's feels is like fingernails on a chalkboard. If you all could read what these poor people go through every day of their lives, you'd want to choke the shit out of anyone who said that about this as well.
I tried to make an appointment with neurosurgery for Skye, as I was told that the referral for the neurologist just stated it was for the headaches, not the cyst and that I would need to make an appointment with neurosurgery to address the cyst itself. Well, because the neurologist that he saw, whom happens to specialize in epilepsy (which of course, has nothing to do with his condition) put in his notes that the AC was an "incidental finding", we've hit a brick wall. Neurosurgery won't see him until "there's something wrong." WTF is all I can say. GRRRRRRRR. "Something wrong." Apparently there's not something wrong with an 8 year old having migraines and pressure in his head constantly, running into walls and such from random blurred vision when his eyesight is at 20/15 per a recent exam... Yeah, there's something wrong. Something really fucking wrong when dr's won't address the issue and brush shit off as incidental findings when there is NO other reason for the symptoms.
The topamax they put him on for the migraines has taken the edge off, but he's still got pressure all the time and still wakes with headaches. I need to get together with his ped and talk with him about all this. I know it's going to piss him off, because I know, and he knows, that 8 year olds should not have migraines and that the cause is obviously the cyst. The reason we went for the ct and mri in the first place was to FIND the problem, and we did... It is the cyst! So therefore, NOT an incidental finding! Am I right or am I wrong here??
I've already vented to the AC group, I'm sure they'll be just as pissed as I am about this. Many of them are working hard to change the medical community's view on AC's and what symptoms they cause. Just because it's not a tumor, they label it as "incidental" like it can't possibly be the root of any dysfunction or pain. I've got myself something to work towards. Helping the AC sufferers to push the medical community into changing their perspective on this illness and not treating it as nothing, but an actual ailment. I'm going to go off an a whole huge tangent if I don't stop myself here. I'll get off my small soap box now before I take the step up behind the podium and start really preaching.
Since I can't post what I'm listening to right now through the little thingy.... I'm listening to Butt Trumpet's "I've been so mad lately". Very appropriate song per my mood right now. If you don't like swearing, don't listen to that song, lol...
I tried to make an appointment with neurosurgery for Skye, as I was told that the referral for the neurologist just stated it was for the headaches, not the cyst and that I would need to make an appointment with neurosurgery to address the cyst itself. Well, because the neurologist that he saw, whom happens to specialize in epilepsy (which of course, has nothing to do with his condition) put in his notes that the AC was an "incidental finding", we've hit a brick wall. Neurosurgery won't see him until "there's something wrong." WTF is all I can say. GRRRRRRRR. "Something wrong." Apparently there's not something wrong with an 8 year old having migraines and pressure in his head constantly, running into walls and such from random blurred vision when his eyesight is at 20/15 per a recent exam... Yeah, there's something wrong. Something really fucking wrong when dr's won't address the issue and brush shit off as incidental findings when there is NO other reason for the symptoms.
The topamax they put him on for the migraines has taken the edge off, but he's still got pressure all the time and still wakes with headaches. I need to get together with his ped and talk with him about all this. I know it's going to piss him off, because I know, and he knows, that 8 year olds should not have migraines and that the cause is obviously the cyst. The reason we went for the ct and mri in the first place was to FIND the problem, and we did... It is the cyst! So therefore, NOT an incidental finding! Am I right or am I wrong here??
I've already vented to the AC group, I'm sure they'll be just as pissed as I am about this. Many of them are working hard to change the medical community's view on AC's and what symptoms they cause. Just because it's not a tumor, they label it as "incidental" like it can't possibly be the root of any dysfunction or pain. I've got myself something to work towards. Helping the AC sufferers to push the medical community into changing their perspective on this illness and not treating it as nothing, but an actual ailment. I'm going to go off an a whole huge tangent if I don't stop myself here. I'll get off my small soap box now before I take the step up behind the podium and start really preaching.
Since I can't post what I'm listening to right now through the little thingy.... I'm listening to Butt Trumpet's "I've been so mad lately". Very appropriate song per my mood right now. If you don't like swearing, don't listen to that song, lol...
posted by Heidi @ 12:28 AM
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