The curse of the internet and sharing of information

The curse of the internet and sharing of information
Current mood: depressed

So I decided to start doing research and reading up on Arachnoid Cysts. What I've found is absolutely devastating for me. The pain, the suffering, the surgeries, and the symptoms people with AC have to deal with on a daily basis. I've found that the symptoms seem to vary only slightly from person to person, and often times depending on where the cyst is located. Skye has a posterior fossa cyst. Meaning his is in the rear. Probably one of the "best" spots to have it if you have one from the sounds of it. I want to get a hold of his CT scans from when he gave himself that concussion when he was 4. I honestly wonder if he's one of the few that got this condition due to head injury, rather than being born with it. Really, it's honestly tearing me up inside so much I'm an emotional basket case, knowing the hell my baby is going to most likely have to face in the future with this thing. It's not as easy as "well, just remove it and it's gone, no issue". so far, I've not read a single story where that's the case. Maybe there are some out there, and because they've had success, they don't write about it, or aren't part of a support group because they're doing okay. I've constantly read that dr's are so in the dark and clueless about this condition, that most just don't want to deal with it or treat it. Now I'm starting to wonder if the dr that I took Skye to is one of those. I've been warned of the words "incidental finding" in regards to it. Because how can it really be incidental if it's causing pain? If he weren't having migraines, we wouldn't have found it, probably for a very long time or maybe not even at all. But I just can't see how these dr's out there can say it's not what's causing the migraines and the other symptoms, when 9 times out of 10, these poor people wouldn't have these problems, aka symptoms, if they didn't have the cyst to begin with! Argh, I'm rambling... Expect that alot from me on this subject as time goes on. I'm sure we'll become jaded towards the medical community at some point because of this. Like so many others have. argh....